Will I ever wake?

This is a weird post. Too long for Twitter. I guess I would normally put something like this on Facebook, but I don’t want to give certain people the satisfaction of seeing it. Yet I have to get it out for my own sanity.

A little background for those who don’t know: I have sleep apnoea. I’m not allowed to drive (since May) until it’s under control. The CPAP machine made it worse, so investigations are being done to find out the cause, and hopefully to fix it.

In the meantime, I exist in this foggy half-life. I can function as a normal person, working hard, smiling and laughing, for maybe 5 days in a row at most. Then, the effort of maintaining that facade hits me. I can barely get out of bed at weekends. When I am up, I yawn so much my jaw hurts (coupled with bruxism, from grinding my teeth, trying to stay alive in my sleep). 

If I try to tell people, a colleague at work for example, just how exhausted I am, I get told in a mocking tone “yeah, I’m always tired too – I just don’t let it bother me”. 

Comments have been overheard too, people talking about double standards, and why I’m not being disciplined for having a few days off here and there, and refusing to exist that they all relate to an existing condition. 

I’ve heard the term “invisible illness” before, but only now do I fully understand just what that means, and what effect it has on the person suffering with it. 

Today I slept through all of my alarms. When I finally woke, after I should have been at work already, it was just all all I could to phone and tell them I couldn’t come in, before falling back asleep.

I’m cancelling more plans than I’m actually going to. Often letting people down at the last minute as I just can’t find the energy to get ready.

My life is getting smaller and smaller. 

The depression I’ve suffered from since I was a teen, has taken on a whole new lease of life. It’s more powerful than it ever has been before, at a time where I barely have the energy to get out of bed. 

I think it’s starting to beat me. And I’m so scared. I’m scared of never driving again (my God, do I miss it). I’m scared of seeing my colleagues’ posts on Facebook later, about me having “yet another” day off (ambiguous enough so I can’t prove its about me, but still very obvious and hurtful). I’m scared that my life will just continue to get smaller and smaller until one day there’s nothing left except tears.

But most of all, I’m scared that the latest round of tests/studies will reveal nothing. And that it really isn’t going to get any better than this.

Advertisements

Preparing for the Future

My daughter is now in her first year of college. I’m working part time, because as I’ve said in an earlier post, it makes more sense both financially and for my little family’s happiness. However things are going to change. From September 2018 my girl will have left college, and all of the benefits I receive will stop. Everything. Child Benefit. Tax Credits. Housing Benefit. And the Child Maintenance her dad is currently paying.

Continue reading

Remember the little things

It’s late, I’m tired, and I have to get up at stupid o’clock for work, but I need to get down what happened today before I start forgetting bits of it.

<!–more–>

I’ve recently met someone who has blown me away with their perspective on life. 

In my eyes, he’s had more than his share of bad luck. Among other things, he lost his daughter and wife (the one great love of his life) in a terrible car accident several years ago. Right now he’s going through daily radiotherapy. If anyone has a reason to be angry at the world, it’s him.

We were talking today about life, racism, rudeness, etc., and I remarked that people are just a bit shit. 
His reply blew me away:

“People are amazing! They do wonderful things every day. They hold doors open for you. They let you out at busy junctions. They jump out of their cars to help you push start yours. Everywhere you look, people are doing wonderfully kind things for each other. The world’s an amazing place if you remember the little things are important too.”

I’m not ashamed to say I had tears in my eyes. I felt completely humbled: here was a man who has been dealt so many bad hands, but he had the ability to see past that. To see wonder everywhere.

Invisible Illness?

This post was born after a brief conversation with a good friend on Instagram. He was talking about how he had finally come to accept that his depression/ocd/anxiety was a disability.
Continue reading

Are Prisons Too Soft?

The government is assessing whether prisoners should be given iPads to help them keep in touch with their families while on the inside. They could also be used to help with literacy, numeracy, and help convicts to gain skills ready for the outside world.

Wow. Continue reading

The Return

I can’t sleep. I woke with a migraine today, which resulted in me sleeping on an off (but mostly on) for about 6 ½ hours during the day. So now, having been in bed for an hour with no sign of sleep, and a million thoughts running through my head, I find myself returning to my blog. Continue reading